Anyone gone through a child having cataracts?

If your child has had cataracts what was your experience? What do you wish you had known? My four year old had a vision check up on Friday after we noticed he was having some problems. I wear glasses and we weren't actually that concerned so we didn't rush in -- we noticed around Xmas. The optometrist thinks he has cataracts in both eyes and is referring him to a pediatric ophthalmologist, but I am information gathering. My son's last check up was about a year ago.

Google tells me by not rushing in we may have missed his brain adjusting and the damage may be permanent. I feel pretty sick we may have missed this and I want all the info I can get. Thanks for any experience or information you can share.